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Research Organizations

There are only a few organizations which focus on looking for causes of infant death and helping to prevent it, though there are many researchers working at this.   The following nonprofits can be found on the internet.  Visit their website often to keep an eye on what they are doing. You may wish to support them or learn from them about what is known at this point and what studies are in the early stages. And if you learn of other groups who are working on prevention and risk reduction, let us know.  Focused on supporting research regarding stillbirth, raising awareness, and increasing education. “Four million babies are stillborn around the world every year. We believe information and knowledge will help us reduce many of these tragic deaths.”  Sponsors a bi-annual Stillbirth Summit in Minneapolis that brings researchers, medical care providers, and parents together to present research and collaborate.

www.First – Helping Babies Thrive and Survive First Candle is a leading national organization dedicated to safe pregnancies and the survival of babies through the first years of life. “Current priorities are to eliminate Stillbirth, Sudden Infant Death Syndrome (SIDS) and other Sudden Unexpected Infant Deaths (SUID) with programs of research, education and advocacy. We also provide compassionate grief support to all those affected by the death of a baby through a dedicated crisis hotline at 800.221.7437.” ISA – International Stillbirth Alliance - A coalition of organizations dedicated to understanding the causes and prevention of stillbirth. “Our mission is to raise awareness of stillbirth and to promote global collaboration in the prevention of stillbirth and provision of appropriate care for parents whose baby is stillborn.”  Holds international conferences to share research.  (International Society for Prevention of Infant Death) - A worldwide organization that promotes and shares evidence-based research on sudden infant death (SIDS and SUID) and stillbirth.  They are developing a depository of research in collaboration with ISA  that is ongoing or has been completed for networking and information-sharing purposes. (Perinatal Institute) – led by Dr. Jason Gardosi, the mission isbe a centre of excellence in audit, research, education and training, with the primary focus on understanding the causes and developing strategies for the prevention of perinatal compromise.  Fetal Growth Restriction is one of the areas of speciality and the area they serve is West Midlands, UK. - led by Drs. Jason and Candace Collins - The Pregnancy Institute, Inc., is a non-profit organization created to study normal pregnancies. It is designed to promote the likelihood of healthier pregnancies resulting in well monitored, full-term live births. (Global alliance to Prevent Prematurity and Stillbirth) led by Dr. Craig Rebens.  GAPPS is leading a collaborative, global effort to increase awareness and accelerate innovative research and interventions that will improve maternal, newborn and child health outcomes around the world.  Has a focus on the developing world.